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The global ahus registry

WebMethods: The observational Global aHUS Registry ( NCT01522183 ), initiated in April 2012, collects demographics, disease history, treatment, and outcomes data for patients with aHUS, regardless of treatment approach. Web29 May 2024 · In this analysis, patients from the Global aHUS Registry (NCT01522183) were included if they were diagnosed with MHT and were followed ≥90 days after initial aHUS symptom presentation or diagnosis date; patients were excluded if they withdrew from the registry or discontinued treatment with eculizumab due to a diagnosis other than aHUS.

The global aHUS registry: methodology and initial patient ...

Web3 Apr 2024 · Background Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra-rare disease. Therefore, studies involving large samples are scarce, making registries powerful tools to evaluate cases. Web26 Jan 2024 · Materials and methods: In this analysis, patients from the Global aHUS Registry (NCT01522183) were included if they were diagnosed with MHT and were followed ≥90 days after initial aHUS symptom presentation or diagnosis date. Demographics and clinical characteristics were evaluated . Table. ... frog grove lane wood street village https://bexon-search.com

Clinical characteristics and outcomes of a patient population with ...

Web1 Aug 2024 · The Global aHUS Registry is an ongoing, observational, noninterventional, multicenter, multinational study (NCT01522183) designed to retrospectively and prospectively collect information on the long-term outcomes and health status of patients with aHUS, as well as the long-term safety and effectiveness of eculizumab in this … WebIn this study, we characterize patients (pts) with triggering/associated events occurring prior/up to aHUS onset from the Global aHUS Registry (NCT01522183). Methods. All pts with triggering/associated events prior/up to aHUS onset and enrolled in the Registry from 2011 to July 2024 were included. Pts with an alternative clinical diagnosis ... WebAbstract. Background: Atypical hemolytic uremic syndrome (aHUS) is a rare disease in which uncontrolled terminal complement activation leads to systemic thrombotic … frog growth and development

Pregnancy-triggered atypical hemolytic uremic syndrome …

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The global ahus registry

Global Atypical Hemolytic Uremic Syndrome (aHUS) Registry

Web24 Sep 2024 · This analysis of the Global aHUS Registry (NCT01522183) assessed demographics and clinical characteristics in eculizumab-treated and not-treated patients … Web10 Dec 2015 · The global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, medical and disease history, treatment effectiveness and safety outcomes data for aHUS patients. The global aHUS Registry will operate for a minimum of 5 years of follow-up.

The global ahus registry

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WebThis retrospective analysis utilized data from the Global aHUS Registry (NCT01522183), an observational, noninterventional, multicenter registry that retrospectively and … Web20 May 2024 · Similar findings were established in the Global aHUS registry, in this study 344 received one or more kidney transplant,188 had received eculizumab. In this study, 88 patients (47%) were received eculizumab before and …

Web7 Apr 2024 · Patients with a clinical diagnosis of aHUS were included in the observational non-interventional Global aHUS Registry (NCT01522183) [].This registry was initiated in April 2012 to evaluate the clinical outcomes of patients with aHUS irrespective of the treatment modality used [].The registry study was established in accordance with the … Web21 Nov 2016 · Here, we describe a collaboration between an international group of patient organisations advocating for patients with atypical haemolytic uraemic syndrome (aHUS), the aHUS Alliance, and an international aHUS patient registry (ClinicalTrials.gov NCT01522183 ).

Web10 Dec 2015 · Methods The global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, … Web3 Dec 2015 · The aHUS Registry, established in April 2012, is an observational, noninterventional, multicenter, global initiative to collect information on patient outcomes regardless of treatment approach. It facilitates availability of follow-up data for eculizumab.

Web24 Jan 2024 · The Global aHUS Registry (NCT01522183) is an observational, non-interventional, multicentre registry that retrospectively and prospectively collects … froggsong gardens weddingWeb31 Jan 2012 · The global aHUS registry: methodology and initial patient characteristics. BMC Nephrol. 2015 Dec 10;16:207. doi: 10.1186/s12882-015-0195-1. Belingheri M, … froggsong gardens wedding costWeb1 May 2024 · In brief, the Global aHUS Registry is. sponsored by Alexion Pharmaceuticals (Boston, Massachusetts), with. all retrospective and prospective cases of patients with aHUS across. 22 countries (351 ... frogg togg burog hip waderWebDue to the rarity of the disease, global aHUS disease epidemiology is not well known. 16 When reported, incidence and prevalence estimates are often combined with similar disorders such as shiga toxin-producing e.coli associated hemolytic uremic syndrome (STEC-HUS) or thrombotic thrombocytopenic purpura (TTP), leading to inaccurate … frog ground coverWebAtypical Hemolytic-Uremic Syndrome (aHUS) Registry. Registry number: NCT01522183 (first listed 31st January, 2012; start date 30th April, 2012). Clinical characteristics and … froggsong gardens vashon waWeb3 Dec 2024 · Methods: Of patients enrolled in the Global aHUS Registry (n = 1549), 344 had ≥1 kidney transplant. Of these, 188 had received eculizumab. Eighty-eight patients (47%) … frogg togg breathable wadersWebAB - AimsTo describe the baseline characteristics and treatment of Australian patients diagnosed with atypical haemolytic uraemic syndrome (aHUS) reported to the Global … froggs saloon daytona facebook